On December 6, 2010, Bruce Kramer was diagnosed with Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease. He has a blog called Dis Ease Diary (http://diseasediary.wordpress.com) that is not so much a commentary on the “progress” of the disease as a weekly reflection on life, informed by the fact that each of us is temporarily able bodied and none of us gets out of this alive. Bruce has graciously given me permission to quote parts of his blog for my blog. Installment number one is below.
There is nothing wrong with sitting quietly on a cloudy day just listening, listening to the sounds around me, listening to music or poetry or words or the inner voice that speaks when all is quiet. Find the quiet center. Find the purest tone. Find the holy. Find the always present voice, often drowned, washed over by the noise of productivity’s need. If the norm is loss, let go of the need to gain. Let go of the need to hold onto that whose ending is already written in the stars. Live through the ending, knowing that there is beauty in every moment of every breath, in every song, in the silent spaces, voices and breath and music.